Faces of Cancer - Aurora

19 Feb 2009 | : Faces of Cancer

Hello My name is Aurora I am 12 I recently lost 2 wonderful dream filled friends both of whom had brain cancer and 1 had childhood brain cancer and had teen brain cancer.

January 2007: I went to Alice Jamison Girls Academy, down stairs to which was Stanley Jones School for deaf and hard of hearing. My friend Jenna Chang went there; she was 6 years old.
In January she got off the bus and went with her mom and went to proceed to cross the street.
A car was coming and some how it ended up hitting them Jenna was taken to the Alberta Children’s Hospital where later into the early morning she Died. 2002 to 2007 a wonderful soul.
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Lung Cancer Web

02 Feb 2009 | : *News*, Announcements

THE JOHNS HOPKINS MEDICAL INSTITUTIONS
Lung Cancer Web

National Familial Lung Cancer Registry

The National Familial Lung Cancer Registry was established at The Johns Hopkins Medical Institutions in September 1993. The Registry was directed by Gloria M. Petersen, Ph.D. with the goals of: 1) to further our understanding of the causes of lung cancer (beyond smoking), and 2) to serve as an educational resource for persons at risk for lung cancer. Over 270 lung cancer families are registered to date. So far, research with these families includes studies of DNA repair capacity and genetic markers and their relationship to environmental factors.

If two or more people in a family have been diagnosed with lung cancer, the family is eligible to be part of the Registry. Family members and patients can refer themselves to the National Familial Lung Cancer Registry, as well as those referred by physicians. Each patient/family referred will be sent a family medical and smoking history questionnaire. In addition we will need to obtain a consent to release medical records on family members with lung cancer. This will allow us to review the medical records and pathology slides of each affected family member to confirm all cases.

Family members who have participated in our study have written letters describing how lung cancer has affected their families and the families’ experience with our research study. We urge persons from families in which more than one family member has had lung cancer to register their families. Dr. Petersen has moved from Johns Hopkins to the Mayo Clinic. Anyone interested in referring a family to the Registry may wish to visit an associated Web site (The Family Lung Cancer Study), or contact Dr. Petersen at: Petersen.Gloria@mayo.edu

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